Study overview

An unknown proportion of patients with coeliac disease are offered an annual review. Within the NHS it will depend on where they live... it may be less frequent, or not at all, and what it consists of varies greatly.

THE STUDY AIMS TO:

  1. Provide a comprehensive description of 'follow-up' and 'annual' review provision for adults and childern with coeliac disease across the UK.
  2. Identify innovative practice in 'follow-up' and 'annual' review provision for adults and children with coeliac disease.

A key strength of this study relies on collecting data from all geographical regions. 

Your involvement:

The online questionnaire takes approximately 15 minutes. You can stop taking part in the survey at any time. Please note that information provided before exiting the survey will be entered into the database.

Confidentiality:

All personal and departmental details will be kept confidential. A code number will be used to identify any information provided. Individual data will only be seen by the research team. No names will be used in any reports or publications related to this work. Data will be presented relating to geographical regions.

In order to enable appropriate recognition of any innovative practice, we will request specific permission to identify individuals/departments within the survey.

Why take part in the survey?

To be part of research which aims to inform guidance and improve the healthcare for people with coeliac disease.

All participants will be invited to take part in a prize draw, there are two £50 shopping vouchers of your choice to be won.

Contact details of investigators

Lead Researcher: Dr Yvonne Jeanes, Registered Dietitian

Health Sciences Research Centre, University of Roehampton, London SW15 4JD y.jeanes@roehampton.ac.uk    Tel. 020 8392 3519

Research Assistant: Sharon Kallos, Registered Associate Nutritionist

Health Sciences Research Centre, University of Roehampton, London SW15 4JD   sharon.kallos@roehampton.ac.uk

The study has been approved by the procedures of the University of Roehampton Ethics Committee. If you have a concern about any aspect of your participation or any other query, please raise this with Yvonne Jeanes. However, if you would like to contact an independent party, please contact the Head of Department (Dr Caroline Ross, Department of Life Sciences, University of Roehampton, London SW15 4JD; Tel. no. 020 8392 3529; email c.ross@roehampton.ac.uk.).

Full contact details will be available again at the end of the survey.

The survey is funded by a British Dietetic Association General Education Trust grant.